Collaborations
Screen4Care’s consortium is supported of a diverse set of external expertise. Please see the following external collaborators, their organisational background and their roles within Screen4Care in more detail
Osservatorio Malattie Rare (OMaR)
Founded in 2010 by Ilaria Ciancaleoni Bartoli, OMaR is the first online journal in Italy entirely dedicated to rare diseases and rare cancers. It provides in-depth articles, interviews, and news on research, treatments, policies, and patient advocacy. OMaR collaborates with institutions, researchers, and patient associations to enhance awareness and access to care for people living with rare conditions.
Role
Osservatorio Malattie Rare (OMaR) is an official collaborator and media partner of S4C, with the goal of raising awareness in Italy about the project’s activities. OMaR informs the public, healthcare professionals, and policymakers on the potential benefits of genetic neonatal screening and its impact on rare disease diagnosis.
As part of this collaboration, OMaR participated in the S4C Project Meeting in Copenhagen (April 2024), reporting on project developments and fostering dialogue among stakeholders. Through its communication efforts, OMaR supports informed decision-making and contributes to the advancement of neonatal screening policies.
Contact(s)
Alessandra Babetto
Journalist