Stimmen von Screen4Care

Das Konsortium von Screen4Care besteht aus vielen akademischen und privaten Partnern aus 14 Ländern. In der folgenden Videoreihe stellen unsere Partner sich selbst, ihre Organisation und ihre Rolle in Screen4Care ausführlicher vor.

Dr Edith Sky Gross (Health & Social Science Senior Project Manager at EURORDIS), Dr Gulcin Gumus (Research and Policy Project Manager at EURORDIS), Sandra Courbier (Social Research Director - Rare Barometer Programme Lead at EURORDIS)

Thomas Bols (Head of Government Affairs and Patient Engagement at PTC Therapeutics) and Ludovic Baillon (Genetics and Diagnostics Lead at PTC Therapeutics)

Ivo Gut (Director of the CNAG-CRG), Sergi Beltran (Head of the Bioinformatics Unit at CNAG-CRG), Raul Tonda (Lead Data Analyst at CNAG CRG) and Leslie Matalonga (Clinical Genomics Specialist at CNAG-CRG)

Michela Zuccolo (Rare Conditions Strategy Director at Roche) & Julian Nam (Global Access Strategy Leader Rare Conditions at Roche)

Steph Grohmann, Senior Program Manager Research Ethics and Integrity at Open Innovation in Science Center (OIS), Ludwig Boltzmann Society on the involvement in Screen4Care.

Dr Yuen Man (Senior Global Medical Affairs Director at NovoNordisk) and Dr Henrik Jarlov (Vice President Global Medical Affairs at NovoNordisk)

Dr Nicolas Garnier (Patient Advocacy Lead for Rare Disease, Pfizer & EFPIA Project Lead) presenting Screen4Care at the 2nd International Conference on Rare Diseases: Greek Chapter